Your Privacy is Important to Us
Your privacy is important to us, and we understand your desire to store and access your information in a private and secure manner.
"Genection Research" means scientific research that Genection performs with the intent to publish in a peer-reviewed scientific journal. Genection Research only uses Genetic and Self-Reported Information from users who have given consent according to the applicable Informed Consent. Genection Research does not include R&D.
"R&D" means research and development activities performed by Genection on user information and data. These activities may include, among other things, improving our Services and/or offering new products or services to you; performing quality control activities; compiling data for scientific use, conducting scientific analysis that may lead to and/or include commercialization with or without a third party.
"Service" or "Services" means Genection's products, software, services, and website.
In the course of your relationship with Genection, we collect several types of Personal Information. "Personal Information" is information that could be used to identify you, either alone or in combination with other information. We collect such information from you when you purchase our Services, create a personal account, complete forms, or when you communicate with us or request information from us. Personal Information collected online can be combined with Personal Information collected offline. We collect five primary types of Personal Information through our Service and website.
- "Registration Information" is the information you provide about yourself when registering for and/or purchasing our Services, such as your name, email, address, user ID and password, credit card information, billing address, contact information, telephone number, and any payment information you provide.
- "Genetic Information" consists of your genotype, e.g. the As, Ts, Cs, and Gs at particular locations in your genome. Genetic Information is generated when you purchase Genection's Service and your sample is analyzed and processed or you otherwise provide your Genetic Information through our Services. We are also required to provide sex and date of birth or age to the laboratory pursuant to Clinical Laboratory Improvement Amendments (CLIA) requirements. No other Personal Information is usually required for the analysis. DNA and samples may be maintained after the testing laboratory completes its work, and laboratory legal and regulatory requirements may also require the actual samples to be maintained. The laboratory securely sends the resulting Genetic Information to us along with your unique barcode. Genetic Information is stored securely on our servers; and the laboratory also stores your Genetic Information, but labeled only with a barcode. The laboratory conducting DNA extraction and analysis does not have access to your name, other Registration Information, or any other Personal Information except your sex and date of birth or age, as required by CLIA.
- "Self-Reported Information" includes information you provide to us, including but not limited to information about your disease conditions, other health-related information (e.g., pulse rate and cholesterol levels), personal traits (e.g., eye color, height), ethnicity, and/or family history (e.g. similar information about family members). We collect this information from you if and when you enter the information into forms or features while signed in to your account. Self-Reported Information is included in Genection Research as provided if you have given your consent as described in the applicable Informed Consent.
- "Aggregated Genetic and Self-Reported Information" is Genetic and Self-Reported Information that has been stripped of Registration Information and combined or “aggregated” with data from a number of other users so as to minimize the possibility of exposing individual-level information while still providing scientific information.
- "User Content" is all information other than Genetic Information or Self-Reported Information generated by users of Genection Services and transmitted to Genection. User Content may include data, text, software, audio, photographs, graphics, video, messages, or other materials. For example, User Content includes any posts made on our website or emails to us. User Content does not include Genetic Information or Self-Reported Information.
- "Web Behavior Information" is information on how you use the Genection website (e.g. browser type, domains, page views) collected through log files, cookies, and other technology.
How We Use Personal Information
Genection collects Personal Information from you to ensure the regular operation of your account and/or availability of our Services. We use this information to provide you with our Service, to improve our Services, and to perform quality control activities. By using our Services, you are also consenting to our using your Personal Information to offer new products or services to you; to invite you to events or to participate in specific research projects, to contact you to obtain testimonials or for other promotional purposes; and to conduct R&D; and, upon your specific authorization, conducting Genection Research. We do not ask you for, access, or track any location-based information from your mobile device at any time while downloading or using our Services. Below we will describe the additional ways in which we use other types of Personal Information.
How We Use Registration Information
We use your Registration Information to authenticate your website visits and usage; to assist in your purchase of the Services; to communicate with you about information, services, and products that you have requested; and to manage and improve our website, software, and Services. We give you the opportunity to opt out of optional communications, either through our Service or by contacting our Privacy Administrator at www.genection.com.
How We Use Genetic and Self-Reported Information
We use your Genetic and Self-Reported Information to provide you with Genection Services, customize the user experience, and enhance our features. If you allow sharing, Genetic and Self-Reported Information may be displayed in the accounts of those users for whom you have granted access. Self-Reported Information may be used to customize your user experience. For example, we may adjust reports of genetic risk to account for your reported behaviors or environmental exposures.
If you have given consent to participate in Genection Research as described in the applicable Consent Document, we may include your Genetic Information and Self-Reported Information in Aggregated Genetic and Self-Reported Information disclosed to third parties for the purpose of publication in a peer-reviewed scientific journal. Genection Research is intended to advance genetic knowledge and to create, commercialize, or undertake activities toward the practical applications of this learning to the improvement of medical science. Also, if you have given consent to participate in Genection Research, we may allow research contractors to access your individual-level Genetic or Self-Reported Information for the purpose of conducting scientific research, provided that all such research contractors will be subject to Genection’s privacy and security rules and guidelines. Genetic and Self-Reported Information used for such purposes may be included in Aggregated Genetic and Self-Reported Information disclosed to third-party research partners. Research partners may include commercial or non-profit organizations that conduct or support scientific/medical research or conduct or support the development of drugs or devices to diagnose, predict, or treat health conditions.
If you do not give your consent to participate in Genection Research, Genection may still use your Genetic and Self-Reported Information for quality control purposes.
How We Use User Content and Web Behavior Information
Web Behavior Information is collected through log files, cookies, and other technology during your connection to the Genection website. Web Behavior Information is used to improve our Services and the overall user experience, and if you have given consent to participate in Genection Research as described in the applicable Informed Consent, your Web Behavior Information may be used and disclosed to third parties in de-identified aggregate form for Genection Research intended to be published in peer-reviewed scientific journals. If you do not give consent to participate in Genection Research, we may still use your Web Behavior Information for R&D purposes as described above, which may include disclosure of de-identified aggregated Web Behavior Information to third-party non-profit and/or commercial research partners who will not publish that information in a peer-reviewed scientific journal.
Log Files. When users visit our website or use our mobile application, Genection gathers certain information automatically and stores it in log files. This information includes Internet Protocol (IP) addresses, browser type, Internet Service Provider, referring/exit pages, operating system, date/time stamp, and clickstream data (i.e. a list of pages or URLs visited). We use this information internally, which is not designed to identify individual users, to analyze trends, administer the site, track users' movements around the site, and gather demographic information about our user base as a whole. We may, in some circumstances, need to review this automatically collected data in combination with specific Registration Information to identify and resolve issues for individual users.
A session cookie expires when you close your browser. A persistent cookie remains on your hard drive for an extended period of time. You can remove persistent cookies by following directions provided in your Internet browser's "help" file. However, if you set your browser to reject cookies, your ability to use our site will be significantly impaired. In particular, you will not be able to access any part of our site that requires a sign-in, such as your account.
Web Beacons. A web beacon is a clear graphic image that is loaded by your web browser when it accesses a website and that records a user's visit to a particular web page. We, or third parties that work for us, may place cookies and web beacons on our website, in our emails, and in our advertisements that appear on other websites or in emails sent by others that mention our products and services with our permission. The purpose of our web beacons is to support operation of our website and to offer additional products and services. We may use beacons to determine when someone views a web page, count how many individuals visit our website after clicking advertisements placed on other websites, or count how many people have purchased products from our website after viewing an advertisement we placed. Web beacons may also help us determine the effectiveness of an email campaign because the beacons can count the number of individuals who open an email or forward it to others. We use this Web Behavior Information to customize content on our website, enable purchases, or conduct research. Third parties only collect anonymous Web Behavior Information through the use of web beacons, allowing statistical analysis relating to the performance of our advertising.
If you wish to disable web beacons, it is possible to prevent your browser from loading them.
Genection gives you the ability to connect with other individuals who have Genection accounts through our community forums, relative finding features, and other sharing features. For some features, opt-out is required to avoid notifications. In addition, you may choose to disclose, through other means not associated with Genection, any part of your Personal Information to friends and/or family members, groups of individuals, third-party service providers, doctors or other health care professionals, and/or other individuals. We recommend that you carefully consider who to share your information with.
Personal Information, once released or shared, can be difficult to contain. Genection has no responsibility or liability for any consequences that may result because you have released or shared Personal Information with a third party. Likewise, if you are reading this because you have access to the Personal Information of a Genection customer through a multi-profile account, we urge you to recognize your responsibility to protect the privacy of that person. It is incumbent upon customers to share Personal Information only with people they know and trust. Users with multi-profile accounts should use caution in setting profile-level privacy settings.
Ordering Genection Services for Others
We do not sell, lease, or rent your individual-level Personal Information without your explicit consent. As a general rule, Genection will not disclose your individual-level Personal Information to any third party, except under the following circumstances:
Partners or service providers (e.g. credit card processorsor our contracted genotyping laboratory) process and/or store the information in order to provide you with Genection's Services.
If you have consented for research, research contractors may access your individual-level Genetic and Self-Reported Information onsite at Genection's offices for the purpose of scientific research, provided that all such research contractors will be subject to Genection's access rules and guidelines.
We are required to do so by law (see the section below titled "Information Disclosure Required By Law").
You have provided explicit consent for us to do so.
We will endeavor to disclose only the minimum information necessary to fulfill the relevant purpose.
Genection may disclose Personal Information for the following reasons:
Genection Research. Genection may disclose Aggregated Genetic and Self-Reported Information intended to be published in a peer-reviewed scientific journal to research collaborators or as a result of publication. You may give/withhold consent for your data to be used in Genection Research when viewing the applicable Consent Document during the process of claiming your Genetic Information into your account. You may also give consent or change your global consent status through your Account Settings at any subsequent time which will be effective thirty (30) days thereafter; however, we cannot withdraw information that has previously been used for published research or shared with external collaborators prior to your request to withdraw consent. Genection will not use your Genetic Information in new research that starts thirty (30) days or more after your withdrawal of consent.
Commercial Partnerships. Genection may enter into commercial arrangements to enable partners to provide our Service to their customers and/or to provide you access to their products and services. We will not provide any individual-level Personal Information to these commercial partners without your consent. However, Genection may include your Aggregated Genetic and Self-Reported Information in information disclosed to these commercial partners.
Disclosure Required By Law
Under certain circumstances, Personal Information may be subject to disclosure pursuant to judicial or other government subpoenas, warrants, or orders. You acknowledge and agree that Genection is free to preserve and disclose any and all Personal Information to law enforcement agencies or others if required to do so by law or in the good faith belief that such preservation or disclosure is reasonably necessary to: (a) comply with legal process (such as a judicial proceeding, court order, or government inquiry). In such event we will notify you through the contact information you have provided to us in advance, unless doing so would violate the law or a court order.
We may post customer testimonials on our web site, and may use testimonials in other formats consistent with consent received. Customer testimonials may contain personally identifiable information. We may use your Personal Information to contact you to obtain a testimonial and obtain your consent via email or agreement sent via fax, pdf or mail prior to using such testimonial and/or using your name along with your testimonial.
Account Closure and Correction of Personal Information
If you no longer wish to participate in our Services, you may close your account by sending a request to Customer Support at www.genection.com. When closing an account, we remove all Genetic Information within your account (or profile) within thirty (30) days of our receipt of your request. As stated in the applicable Consent, however, Genetic Information and/or Self-Reported Information that you have previously provided and for which you have given consent to use in Genection Research will not be removed from ongoing or completed studies that use the information. We may also retain Aggregated Genetic and Self-Reported Information for R&D. We or our contracted testing laboratory may also retain your Genetic Information as required by local law and we may retain backup copies for a limited period of time pursuant to our data protection policies. In addition, we retain limited Registration Information related to your order history (e.g., name, contact, and transaction data) for accounting and compliance purposes.
If your Personal Information changes, you may correct or update your Registration Information via your Account Settings page. You may also correct or reset Self-Reported Information entered into a form or feature by emailing a request to Customer Support at www.genection.com and including the name of the specific survey, form, or feature.
Newsletter and Email Communications
You may choose to stop or start receiving our marketing emails by changing your notifications settings in your account (go to Account, Settings, Notifications) or you can contact us at www.genection.com.
Genection is committed to protecting the privacy of children as well as adults. Neither Genection nor any of its Services are designed or intended to attract children under the age of 13. A parent or guardian, however, may collect a sample from, create an account for, and provide Self-Reported Information on behalf of his or her child. The parent or guardian assumes full responsibility for ensuring that the information that he/she provides to Genection about his or her child is kept secure and that the information submitted is accurate.
Genection takes seriously the trust you place in us. To prevent unauthorized access or disclosure, to maintain data accuracy, and to ensure the appropriate use of information, Genection uses a range of measures to safeguard your Personal Information.
Please recognize that protecting your Personal Information is also your responsibility. We ask you to be responsible for safeguarding your password and other authentication information you use to access our Services. You should not disclose your password or authentication information to any third party and should immediately notify Genection of any unauthorized use of your password or other authentication information. Genection cannot secure Personal Information that you release on your own or that you request us to release.
If you have questions about this policy, please email Genection at firstname.lastname@example.org. You can also contact us at this address if you have a question about Genection's handling of your information:
6330 Nancy Ridge Drive, Suite 104
San Diego, California 92121